Many people and places aided in my personal brain injury recovery. I talk about some of these places throughout the book. My goal is to help others get the support and help they need. and others have added to this list. If you have other resources you’d like to add, please fill out the Contact form and let me know!
The website that helped me get my cognitive edge back can also help you with brain-training exercises that “can make you smarter and more mentally fit.” Their games are developed using the latest information in neuroscience. They offer both free games and paid memberships.
“The Brain Injury Association of America (BIAA) is the voice of brain injury. We are dedicated to increasing access to quality health care and raising awareness and understanding of brain injury through advocacy, education and research. With a nationwide network of more than 40 chartered state affiliates and hundreds of local chapters and support groups, we provide help, hope and healing for individuals who live with brain injury, their families and the professionals who serve them.”
“The Brain Aneurysm Foundation developed in 1994 from a close relationship between patients and healthcare professionals who identified the need for comprehensive information and support for brain aneurysm patients, their families, and the medical community. The Brain Aneurysm Foundation is the nation’s only nonprofit organization solely dedicated to providing critical awareness, education, support, and research funding to reduce the incidence of brain aneurysms.” They have a community support website, great webinars and an active Facebook page community
This Washington state chapter of the BIA provides support, advocacy, education and preventive services. Their mission is “to increase public awareness, support, and hope for those affected by brain injury through education, assistance, and advocacy.” They also operate a phone helpline specific to traumatic brain injury (TBI) that offers information, referrals, and over-the-phone and in-person resource management to thousands of brain injury survivors and their families. The BIAWA often partners with other organizations to help survivors of acquired brain injury (ABI) as well. This non-profit organization supports legislation to protect kids in school sports. In 2010, the BIAWA played a crucial role in passing Washington’s Lystedt Law, named after an injured young football player. Now, twenty-two states have adopted this law, which requires young athletes who’ve suffered concussions to get medical clearance before competing again.
The Brain and Spine Foundation is a United Kingdom-based charity helping people with a range of neurological conditions. It publishes a free patient information booklet on subarachnoid brain hemorrhage and has a helpline staffed by specialist neuroscience nurses who can answer questions on any neurological topic.
For medical studies, journal articles and any other current and medically sound information and science. From their website: “PubMed comprises more than 21 million citations for biomedical literature from MEDLINE, life science journals, and online books. Citations may include links to full-text content from PubMed Central and publisher web sites.”, and online books.” I consulthis site for information on the recommendation of one of my doctors.
For quick lookups and explanations about common health issues, “WebMD provides valuable health information, tools for managing your health, and support to those who seek information.” I often consult this site when I don’t understand terms in my medical reports or need information explained in layman’s terms.
This wonderful in-home therapy service helped me continue rehab and recovery after leaving the hospital. From their website: “Founded in 1991 as an alternative to traditional neurological rehabilitation programs, this unique service is delivered where patients need it most; in their own surroundings. Rehab Without Walls is focused on providing patients with the functional skills necessary to participate in practical daily activities at home, school, work or in the community where they live.” They currently serve ten states, including Alaska, Arizona, California, Idaho, Michigan, Nevada, Oregon, Texas, Utah and Washington. If they do not serve your area, I’m sure there is a similar organization that does, so ask your doctor or healthcare provider.
My friends created an online journal and guestbook on this website to keep others informed of my progress. From their website: “CaringBridge provides free websites that connect people experiencing a significant health challenge to family and friends, making each health journey easier. CaringBridge is powered by generous donors. CaringBridge websites offer a personal and private space to communicate and show support, saving time and emotional energy when health matters most. The websites are easy to create and use. Authors add health updates and photos to share their story while visitors leave messages of love, hope and compassion in the guestbook.”